2020世界罕病日網上研討會
Our task force leads Karen Yuen and Sui Wong joined the “2020世界罕病日網上研討會” organized by Rare Disease Hong Kong (RDHK), formerly known as “Hong Kong Alliance for Rare Diseases (HKARD)”.
Karen talked about the opportunities and challenges for clinical trials of Rare Disease Drugs in Hong Kong from the perspective of global pharmaceutical companies.
Karen talked about the opportunities and challenges for clinical trials of Rare Disease Drugs in Hong Kong
Sui expressed views on how a comprehensive rare disease policy could assist in rare disease-related research study and support patients in Hong Kong.
袁佩珊女士於會上從跨國科研製藥業界的角度，闡述了罕見病藥物於香港進行臨床研究的機遇及挑戰。她與本會另一代表黃穗洲女士，亦一同參與了香港罕見疾病聯盟會長曾建平先生，以及香港中文大學生命科學學院教授陳浩然教授共同主持的討論環節。本會代表認為，訂立全面的罕病政策有助罕見疾病研究，同時可對病友提供適切支援。
